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Dear Parents and Friends, You might recognize your child in these letters of encouragement. If your child is not doing as well as these kids, do not despair, it seems about 20% of these sweet kids are really tough cases...like my son...they will get there...but it just takes a lot more patience and determination. Remember that you DO have to get the supplements in before they can work!!!!! I know that it is tough! Anyway, please read on and pass it around to other parents to give them a ray of light!!!!!! The following are excerpts from a sample of patients to describe the progress in their child after treatment that we have devised as a result of testing and subsequent treatment: Case AWe are so excited - B. has only been on the vitamins for a few days and we have seen remarkable changes!! Today he went over to a paint box and said red, white, green, blue, yellow, orange, and brown!! He pointed to the different colors with a paint brush and said them!! I had no idea he knew any colors! He also started saying ELMO and Pooh this week. Also when I started counting I stopped at 7 and he then said 8, 9, 10 - my husband almost fell over. We have done just about everything you can think of to help him - I mean everything - and we have never seen such big changes since changing to the vitamins you recommended. He had been on the traditional DAN vitamin protocol for a year and we saw very minor changes - this is his first time though on probiotics and enzymes. I just want you to know how grateful we are - I know we have a long way to go - and are going to our children's hospital to do the blood draw on Monday morning - but we both feel so much hope now. Thank you! -- M Family 1 week later:I know you are busy but I just want to give you a quick update on B - HE HAS GONE FROM 44 WORDS LAST WEEK TO 88 THIS WEEK!!!!!!! We can hardly believe the change. He know fills in the blanks for rhymes with words I didn't even know he know - i.e. Twinkle twinkle little and he says star - and then up above the world so high like a diamond in the and he says sky - In the last 4 days he now does that for over 15 rhymes. The supplements really have made a difference - that and combining the rhymes seems to be our ticket to unlocking his thinking. We are so pleased. Case BOn a quick side-note, I know your busy and short on time but I really wanted to tell you how well A. was doing. Since starting his treatment he has learned all of his shapes, colors, 6 different animals and the sounds they make, and gained close to 75 words on top of that. He has also began using the sentence, "I want ____." He will come to me spontaneously now and ask for things. You have been such a Godsend, thank you so much for all of your help. Case 1J. is doing great. Why did you assume the transfer factor did not help that much? The changes I've noted to date include less hyperactivity, she's calmer and more focused and most exciting of all she has begun answering questions like; In the past she would've either repeated back the question or not responded. These answers were spontaneous and not based on repetitive questioning and modeling an answer. Last night she and I were actually able to have a "conversation" for about 5 minutes talking about riding horses, merry-go rounds, horse colors, etc. It was really exciting. Case 2M. is definitely doing well on the TF - calmer. Also, while waiting for this protocol to start, I put her on 600mg daily of carnosine. Well, the difference in her wanting to participate socially is amazing so I am keeping her on it. She has been on it for about 5 weeks and I saw the difference within the first week. Of all the interventions, I would rate the most effective as the GFCF diet, cod liver oil for eye contact and carnosine for social interaction. Now I might say transfer factor for cooperativeness. M. did his first stand up pee-pee this week! Case 3:These are the things we noticed when starting your supps Case 4:I wanted to tell you this, as it is as a result - no doubt - of me taking W. off of his latest reported allergy related foods. I think in particular bananas. His ABA team meeting today reported that W. has made huge progress this week, no tantrums and much calmer. They added verb programs into his book just Thursday and he is able to identify eating, drinking, sleeping and walking already. This morning he counted to ten spontaneously in front of me and my husband. He also said "I Love you". His diapers have continued to improve and he is playing with many more toys. I thank you so much for ordering the Igg90 test though obviously thank you can never really thank you! Case 5"K. is calmer, less meltdowns, better attention and eye contact. Joint attention better....more socially tuned in......" Case 6"K continues to improve. His only concern is speech/language delay. He continues to progress and our hope is when he is age-appropriate for kindergarten, he will be mainstreamed successfully." Case 7"J has made very significant progress. He no longer has chronic diarrhea. He has learned to ride his tricycle and even keep his helmet on. His stimming has become an unusual occurrence. He is sleeping through the night..." Case 8"M continues to maintain progress in many areas...his speech is finally coming in at a rapid rate...if anyone had told us this would happen a year ago, we would not have believed it. He is more affectionate and actually seeks out our company now. His food repertoire has increased tremendously. However, the very best thing is that he is so much happier than he used to be...so comfortable in his own skin...Thank you from the bottom of our hearts!" Case 9M. is doing very well indeed - better and better every day! She is only on B12 now - marvelous - stopped two creams because of rash. There is real hope for older autistics - because M is 12 yrs now and the improvements are snowballing every day. She played her flute solo in front of parents and whole school - two years ago she hid in cloakroom. Case 10By the way, Z is repeating a few words, loves his numbers & has all of a sudden developed a REAL love for his brother whom he now plays with... & has been filling in the blanks to a few action songs. A lot of the words are not clear but hopefully that will improve with chelation. He has a remarkable memory for tunes! He even sat for the entire circle time in nursery school for the first time today. We re-started the TTFD & gluth creams & also started Transfer factor about 10 days ago. He's much calmer & doesn't stim. as much . Special Case: This is a 26 year old patient!E. doesn't repeat himself so much any more! He was praised at his program for his good behavior. Most important: he started to use his language appropriately, making good comments. One time, while he was riding in the car, he pointed it out to his sitter that the car was running out of gas. Every day he is saying something new. We decided to record his new sayings. E. is smiling and laughing a lot. He now has a good friend! So let us work together to help these sweet Autistic kids. If we have knowledge, let us pass it on to other parents. Let us encourage each other and not give up! "Spiro, Spera"...As I breathe, I hope! God bless and don't forget take care of yourself also! RNA Therapy - RevisedHere are some web-sites pertaining to RNA therapy: Parent chat room: www.autismanswer.com e-mail for questions: info@holistichealth.com Dosage: .5 ml, twice a day unless directed otherwise. In some acute cases, we might wish to increase the dosage up to 5 times a day! (e.g. seizures or aggressive behaviours) I recommend that you put all of the different RNA together in a small amount of water and have your child drink it. Then rinse the cup a couple of times by adding small amounts of water to the cup so none is wasted. For adults, if you wish to take the drops directly into your mouth, make sure that the dropper does not touch your mouth. Contamination can ruin the whole bottle! If that happens, rinse the dropper in boiling water. We can sometimes see results instantly, at other times, it can take up to 3-6 weeks. I have seen miracles with this RNA therapy! Please give me feedback as this is very cutting edge and we need the data! Please try to start this on its own and not with other new supp so that we can have a clear idea of the effects of RNA therapy. The drawback of this therapy is the cost.... if you order it from me, I can get each bottle for $90 a bottle... also the company charges a fortune in shipping, so I can ship these along with your other supp. Keep in mind that our kids seem to need 4 types of RNA to get max benefit and each bottle only lasts 3 weeks. The effects can be immediate or take up to 3-6 weeks to come in....most of my kids seem to respond pretty quickly but if your child is a slow responder, it can cost you a lot before you notice results. Having said that, the results seem to be quite spectacular. God bless and good luck! Here is some feedback: Case 1S. is doing excellent think R.N.A helped him a lot. After 7 days taking R.N.A started to repeat many words to his teacher. Case 2We are seeing improvements daily with R because of the RNA. For several months he was saying the following words in-correctly: ambulance, helicopter and fire truck. In a matter of days they are all of a sudden clear and correct. The teachers have all been commenting also. Case 3I just now (Sunday) started the RNA. I really wanted to see if it made a difference. WOW! Did it! He is more engaged in play. Sunday evening I was working in one of the rooms in the house and he walked in three different times and said, "Hi". He has never done that before! It was so spontaneous! He also climbed into my lap with a book and said, "Read the book." His ABA teacher heard him do it today also. Today we did our last trip to the Mind Institute and he really impressed the doctor their too. He was very focused during the testing and after he completed a task correctly he started saying "Good job.", because the doctor was. This stuff is great! I will keep taking daily notes. Case 4G. has been on nerve calm, health found, and bowel for almost three months and is doing well. We are starting to see some spontaneous language come in. Her protocol starts with genetic testing and child specific supplementation based on the results of the test. There was talk of a physician only training in the fall back east to further explain the protocol. We are switching G from the dmps to the rna's only. Please keep us posted on how much you incorporate the protocol into your practice. Currently there are very few DAN doctors embracing this approach. Last note, Amy is very hopeful and completely committed to finding every single piece of the puzzle and she is confident that even the older kids and most severe cases can be cured. We find that very inspiring and you probably will too! Take care, J. Case 5The RNA bottles are working well for J. He is pretty good in all areas. I will e-mail you the details about his progress that we see. I got an excellent report from school day after we started RNA bottles. He did excellent job so far. We started to take him out to restaurants with the family. He is so calm and sits so still until the end of our meal which lasted more than one hour. Wow! That is amazing! Thank you so much Case 6 (Not my patient)I have used the RNA's Nerve calm on my son. When he goes all week without it, he is more difficult to work with. Within one day, of taking the RNA's he is much calmer, and is at ease with life. I have run this test, many times to see if it works. And I keep getting the same results, a much happier calm child. I am not advocating them, but have seen such positive results. It's been two weeks since I have tried them, and will start again this weekend to see again if I see the changes. Case 6 (not my patient)I am glad you are using the RNA's because I feel they help to especially after that seizure I was out of nerve calm but as soon as I got it I would give it 4-5x a day with benefit. Case 7We just went back from Taiwan. I have good news about J for you. He had a well behavior on the flight. (for 13 hours fly time) Can you believe that? He sat very well, never asking for up (only when he needed to go potty), ate his meal, and buckle up by himself (this is cute). The biggest news is he can use whole sentence to express what he wants (without prompting). "I want to eat cookies", "I want to play Buzz", "I want to watch TV", "I want mommy tickle me". I knew the RNA bottles work very well for him. Thank you so much!! Case 8 (Not my Patient)We added 5 different RNA's to the supp. Within a day, Jamie had never, ever looked healthier and his GI issues dropped off dramatically and have never come back. This was consistent with what I had heard from other parents. This was 2 months ago. If I let our RNA inventory drop, my wife gets really pissed because she sees and lives with the difference. Could this all be placebo and we're just imagining it? Sure. . .but I'll keep using them. - We added Metals I about 3 weeks ago. Wow!!!! I promise you this stuff is not water. Immediate, dramatic increase in stimminess (read: excreting metals) in our ASD son and dramatic increase in aggressiveness in our NT son (who we also chelate). Jamie's urine has done all the things Dr. Yasko talks about in the book (gotten real dark as the Measles virus comes out and then clear as the metals leave the body). All placebo? No. Do I know it works? No. Do I believe all the parents I personally talked to who swear by Yasko. Yes. Case 9The RNA has had the best effect on both boys. M. is more regularly verbal and he intermittently makes sounds of partial words that he has just heard. Even imitation is a great language improvement for him. He babbles more, but we are unsure whether he is beginning to use voluntary language as a communication tool. M. regularly toilets himself (bladder always; bowels almost always) and he does so on his own. The bowel control is vastly improved. He also has begun with a picture exchange communication system (yesterday) in class at public school, and he is learning that very quickly to make choices and to indicate his needs. He wanted a book that another child had, but he used the picture to indicate that he wanted a book instead of taking one from the other child. Formerly this would have precipitated biting; we all were very encouraged at his progress. He is the least verbal child in his public school class, but he is ahead of most of the other children in social skills and giving/receiving affection. He also is greatly calmed by vestibular stimulation when he is given a chance to lay in a hammock-like swing and be swung for about five minutes. The RNA medication has the baby making more sounds and more complex sounds than ever before. I find that he also seeks me out actively when I visit his preschool and he is more actively seeking for affection, raising his arms to greet me, and hugging me when I arrive. Case 10Oh, there is no question, D. is doing phenomenally. I KNOW the RNA is working! Case 11I was just wondering if it was too late to order some more RNA. G is just doing amazing on it. Last night was family movie night and G actually was watching the movie. What was more exciting was he was acting totally in love with his sister. He kept holding her head in his hands and saying I love her, I love my sister, I love Michelle, kiss Michelle. He would put his face right in hers. He also tried to EAT POPCORN! UpdatesI must be in writing mode; here is one more message I would like to past on to you: I just got back from giving a conference in Montreal and I ran into the only DAN doctor in Scotland. He has some exciting news and that is, in his research, he found that when our children go onto the casein, gluten free diet, they get galactose deficient. It is this galactose deficiency that leads to being intolerant to phenol foods. Enzyme-Aid from Kirkmans corrects this galactose deficiency and then our children can then eat phenol foods again! The second piece of interesting news is that I went and spent 4 hours at ImmunoSciences Lab with Dr. Ari Vodjani and Dr. Jackie McCandless, in LA. Dr. Vodjani presented a 4 hour slide show to us that explained that there are 62 microorganisms that have anti-bodies that cross-react with Myelin Basic Protein. Also, antibodies to casein and gluten also cross-react to MBP. This is really bad news because it means that when these antibodies are around, they attack the myelin basic protein which is in the brain and nerve cells, making it difficult for our Autistic kids to progress. That is why it is so important for Autistic children to on a casein and gluten free diet. It is not the immediate IgE results that we worry about, but the metabolic effects of these antibodies attacking the brain and nervous system that hinder our kids' progress that we worry about. Also, Dr. Vodjani emphasized how oral hygiene is important. The microorganisms in the mouth can give rise to major antibodies. Well, that is all for now. Take care! Miriam Jang MD Fatty AcidsFatty Acids are important in maintaining cell membranes as well as in cell to cell transport. Unfortunately, we tend to only hear about supplementing Omega 3's at the DAN Conference and not enough about the Omega 6's. An alarming imbalance of too much Omega 3's and not enough Omega 6's is seen in my practice lately. So I would like to remind all parents that a balance is very important for optimal functioning in your child! Another point I would like to make that often the whole family is deficient in the essential fatty acids! You can do a separate fatty acid test or you can get the fatty acids tested as part of the ION Panel from Meta-Matrix; it really is a very good deal since it is at a heavily discounted price and it includes vitamins, amino acids, the Organix test as well as metals in the red blood cells (elemental analysis in erythrocytes) Omega 3 Sources:Omega Brite Omega 6:Borage Oil EczemaHi! Here is some info for eczema: The toll free number is 1-800-665-4367,since it is in Canada, if this toll-free number does not work, the regular number is 1-204-953-0233 http://www.hemperor.com
Also, there is this important instruction: The first thing to do is absolutely cut out all milk products, followed by cutting out all wheat products. Good luck! Dear Friends and Parents, Again, it has been a long time since I wrote a newsletter......time flies whether you are having a good time or not......Still, many kids are improving so much that all the hard work that all you parents put in is worth it...I know that there are parents out there that put in a lot of hard work and have very little progress to show for it, please do not be discouraged, we are forever looking at new options to make a difference. In this update, I have some very exciting news!!!!! Again, at this point, I would like to put in a medical disclaimer that all this information is not to be taken as medical advice, that you should be under the supervision of a doctor and you should try all these treatments at your own risk. 1) Vitamin A ToxicityI would like to start with some very serious news: we do have to be careful of Vitamin A toxicity with our sweet kids. There is a child with reported Vitamin A toxicity that was so severe that the child had to be hospitalized for 12 days. Please do keep an eye on the level of Vitamin A. There is a dilemma since we do the high Vitamin A protocol to combat viruses, in particular, high measles antibody titer, but on the other hand we do have to be careful of toxic levels of Vitamin A since it is fat soluble and can accumulate in the fat cells and is not peed out like water soluble vitamins. Some signs to watch out for are: a) Abdominal enlargement: this can be caused by liver enlargement or by fluids accumulating with live failure b) Cracked lips and cheilitis, inflamed areas of the corners of the mouth. I know that a lot of patients on supplements have these symptoms, please note that this alone does not indicate Vit A toxicity. c) Loss of appetite, hair loss, etc Luckily, the mortality or death rate from Vit A is very rare. Out of 706 cases reported, there was zero mortality. 2) Magnetic Clay TherapyI have some very exciting news about the use of particular magnetic clay that I am doing a study on that seems to be even better than the TD DMPS in chelation. The web-site is www.magneticclay.com . Please note that I do not get any kick-backs from any of these products that I recommend. Apparently this clay bath does not add metals to your child which some of the clays can. So far, I have put a huge number of patients on these clay baths and the levels of the heavy metals: mercury, lead, arsenic, aluminum and cadmium have come down dramatically. I follow the progress with 6 hour DMSA challenge urine test from Doctor's Data. One particular patient had very high levels of mercury and levels of lead that were off the charts. In 3 months of twice weekly clay baths, the lead came down dramatically and the mercury disappeared. The muscle weakness associated with high lead levels improved dramatically. Interestingly enough, another 5 months of these clay baths showed even lower levels of lead but the mercury reappeared. This supports the theory that mercury is sequestered in different areas of our body and it take time to get it all out. The advantages of clay baths over TD DMPS and oral DMSA are: a) Almost zero side effects except drying of the skin which can be alleviated by a good moisturizer. You see, even though the TD DMPS is applied over the skin instead of ingested orally, there is still absorption of sulfur which feeds the yeast and bad bacteria in the gut so that you can still have bad behaviours from the TD DMPS. I have quite a few patients that needed to go on antifungals because of the TD DMPS. By the way, if your child is on TD DMPS and is irritable or hyper, please try adding lipoceutical glutathione. This has helped quite a few kids. b) No stress on the liver: clay baths do not elevate the liver enzymes, one less thing to worry about! c) Cost: these clay baths are about $50 for 10-12 baths, compared to $150-$160 a bottle for TD DMPS or $95-$100 a bottle for DMSA. d) Ease of administration: It is dissolving a cup of powder clay in the bath and soaking for 15-30 minutes, twice a week. Most of our sweet Autistic kids love the bath anyway, so it really is not a bad way to get rid of metals e) Faster results: I have been monitoring the levels of metals using all 3 methods and the clay baths are way faster in the removal of metals. f) Covers a wider spectrum of metals: For instance, DMSA and TD DMPS do not remove aluminum or nickel well. There are specific clay baths that handle these metals. In addition, there is a clay bath for environmental toxins so that we can start detoxifying some of the chemicals that also accumulate in our kids. P.S. I advocate the whole family doing these baths since we all have some accumulation. 3) RNA therapyIn my search for therapies for kids that are not doing well despite following the Dan Protocol, I have come upon RNA therapy. As a graduate from Honors Biochemistry before medical school, I know that theoretically, oral RNA should not work. Any protein should be broken down by the gut and should not be effective. However, I am a very bottom-line person; I believe in results. Now, I had some bronchial pain for about 3 weeks that I did not know whether the origin was viral or allergic, being so busy, I just ignored it! The bronchial pain went away 3 hours after I started the Health Foundation and the Stress Formula. The aches and pains that I have from my kick-boxing also went away. The symptoms came back by nightfall which was time for another dose. The symptoms went away permanently after 3 days of RNA therapy. For Marky, my son, I put him on: 1) Health Foundation: Against inflammation: of the joints, organs such as the liver and kidneys, the brain and nervous system 2) Stress Formula: To control the effects of internal and external stresses 3) Nerve Calm: To help the nervous system: it can be used to control seizures 4) Behaviour Formulation: This help in stim behaviours or hyper or irritable behaviours Marky has increased a lot in awareness, e.g.: he turned over the cups in the Chinese Restaurant so that I can pour the tea. Marky's level of consciousness is different. Most notably, his speech has improved a lot. Out of the patients that I have started the RNA therapy on, there are 1 or 2 that did not notice any changes, most report an increase in speech and in awareness. Here is more information in the RNA attachment (above). 4) Treatment of Aggressive Behaviours:a) Marinol: This prescribed medication has the same active ingredient as marijuana. The main benefit over Resperdal is that it does not have the horrific side effects that Resperdal has. In particular, please be aware of dystonia that can occur with Resperdal where the child has different body parts that go into spasm - sometimes irreversibly. Also, the chronic form of dystonia is tardive dyskinesia where there are eccentric involuntary movements of different parts of the body; this can also be permanent. Contrary to popular belief, these side effects can happen at very low dosages and over quite short periods of being on this drug. Marinol has a calming effect within 20 minutes of administration. There are virtually no side effects. The main draw-back is cost. The dosage is 5 or 10 mg. 3 times a day. The cost of a 10 mg capsule is about $20 so if your insurance does not cover it, the cost can be prohibitive b) Namenda: Dr McCandless brought this medication to my attention. Even though this drug is used as An anti-Alzheimer drug, it has been very useful in controlling undesirable behaviours in Autistic kids Usually this drug is given as 10 mg, twice a day. Usually, we give galantamine, 4 mg, twice a day for 2 weeks before we start on the Namenda. Galantamine is a new supplement made from a relative of the daffodil family that repairs the nervous system. Well, I think that is all the information that you would like to digest at one sitting. These have been on my mind and I am glad to have it finally come out to you. Please keep up the good work and remember not to get discouraged, especially when there are regressions....Remember that these do not last forever! God bless and Stay well! Miriam Jang MD DAN! Conference, Part 1Dear Parents and Friends, How are all of you? Physically, I barely survived the DAN conference; everything hurts!!!!! But emotionally and intellectually, I am elated!!!!! This is one of the BEST DAN conferences with a LOT of great tools that will help our Autistic kids a LOT!!! I am very excited. The 2 main things that I am definitely insist on is for ALL my patients to be on Methyl B12 shots for 18 months to a year and to do Transdermal DMPS for as long as it takes. Dr Neubrander talked about how he gets 90% response to Methyl B12 shots with 70% moderate to excellent response if the diet is implemented as well. One of the side effects is hyper-activity or irritability. Unfortunately, that is something that the parents will have to go through and not stop the therapy if we are to get results. Another side effect is the increase in mouthing of objects. This is the nerves coming alive again and is a GOOD thing. This is also transient. For more information, please visit www.drneubrander.com . The Methyl B12 helps the body in the many methylation processes that are so necessary for detoxification among so many other vital functions. I would also like to add that there are also DAN doctors that advocate giving the methyl B12 shots with Folinic acid and N Acetyl Cysteine at the same shot. It is supposed to be still painless, but it does increase the volume to .5 cc which in my mind, could cause some pain after the shot is inside the tissue so that the pain is not caused by the needle but by the solution. The second exciting tool is the transdermal (TD) DMPS. Dr Buttar gave us a 4 ½ hour talk on Friday night about this. What is VERY interesting is that he treated one very sick patient that did NOT show high mercury levels even on the challenge test. After 2 months of chelation, then the mercury levels went off the chart. The moral of the story is that sometimes the mercury is so deeply sequestered, that it takes a long time before it even shows. I asked Dr Buttar if we should assume that ALL Autistic kids are mercury toxic, no matter what the challenge test shows. Dr Buttar's answer was a resounding "YES"!!!!! I agree 100% with him!!! The length of treatment varies with the individual; we need to monitor with repeated blood, urine and stool tests to see what the mercury level is doing. Dr Buttar claims that 21 out of 36 patients in his study ended up not only off the diagnosis, but completely quirk free!!!!! I disagree, as do Dr McCandless and other prominent DAN doctors, that the TD DMPS does not have to be done with the gfcf diet and that we don't have to clean up the gut first. I think that you can into a LOT of trouble, if you do not do these things first. I think that a CSA or CDSA (Comprehensive Stool test) and an Organic Acid test are the 2 minimum tests that need to be done to make sure that there is no yeast over-growth and no bad bacteria in the gut. Also, a challenge baseline test should be done so that we know what we are beginning with as far as metals are concerned. I know that it is hard to wait...we just want to get going and just DO it!!!!! Beyond these 2 major things is again the reminder that we need to be ever mindful that our Autistic kids cannot detoxify well so that we need to avoid anything that needs to be detoxified, such as food dyes, aspartame, MSG, fragrances, preservatives....Remember that since they cannot detoxify, these things will actually poison their nervous system and guts. Again, all the patients that have their kids diagnosis reversed have gone that extra step of detoxifying the house and yard...organic mattresses so that the chemical fumes would not be inhaled by the child, filtered water, testing and sealing the paint or carpets, organic foods, air filters...etc. I know that it is hard to think about this final factor since you are already spending so much time, energy and money on the diet and the supplements, not to mention all the OT, speech, ABA, etc. I just need to have you put a schedule on this aspect as well and do a little at a time. Remember our pledge not to make believe when it comes to our children. What needs to be done HAS to be done. We cannot pretend it away. Finally, I wish to share a very touching e-mail that I got from a brilliant, very dedicated and very humble patient, just today:
All the best from me, DAN! Conference, Part TwoDear Parents and Friends, I am sending you some more gems from the DAN! Conference. Before I start, I would like to tell you that I am on page 16 of the Oct issue of the Costco Connection for those that get that magazine.....I don't look that great in it (bad photographer, ha, ha)...but the info is good and you might want to share it with other parents. There are so many patients that, after 18-24 months of treatment, get off the diagnosis, that I lose track. Here is another e-mail that I just got last night:
I am doing a study of a product call ThreeLac, along with Dr. John Green. If you want more info on it, please contact: mark@candidafree.net Basically, ThreeLac has 3 different types of excellent good bacteria in the spore form so that it survives the gut. Along with a casein, gluten and sugar free diet, major miracles have happened, including 4 out of 4 Autistic kids getting all better. We need to give Methyl B12 shots and magnesium malate with the ThreeLac. I am going to have ALL my patients on that as well as the TD DMPS and the Methyl B12 shots...That will be Dr Jang's Trio!!!!! One of the most important things to make sure that your child does not have in all these treatment protocols is that they do not get CONSTIPATED. That is because the toxins and the yeast die-off products will have nowhere to go......You are sure to get bad symptoms then. The fatty acids often give kids soft mushy stools anyway. Also, we like to push the Vit C and the magnesium malate to the point of bowel tolerance, i.e. just below diarrhea level. These supp are very important and you can never get enough. One little jewel I gleaned from Dr, McCandless' session for doctors is that she does not prescribe Diflucan without prescribing Flagyl (Metronidazole) to keep the Clostridia under control while she is treating the yeast. For aggressive behaviors, Dr Baker suggests up to 4 TBSP of Flaxseed Oil. Dr McCandless suggests Theanine, Taurine, 5OH Tryptophan and GABA. Dr Bradstreet suggests: a) Suspect Gluten and casein leaks b) Inositol 1-6 gms, 3 times a day c) Chromium 100-200 mcg daily d) Taurine: up to 10,000 mg a day e) GABA: up to 10,000 mg a day f) Low Carb diet (no refined sugars) g) Elim of Artificial colors h) Often improve with chelation i) I do not approve of Resperdal even though Dr Bradstreet mentions it as a consideration. Kids can get irreversible muscle spasms that make the child look like a stroke victim. This can even happen in low dosages and for short treatment periods. I had one patient who was on it before I started treatment and it was a NIGTMARE to reverse the symptoms!!! For those of you who were not able to attend the DAN conference, you can order the booklet with all the info from the various speakers from ARI (Conference Fall Proceedings Fall 2004) from ARI 619-281-7165. There is a LOT of good info in it! You can also order video or audio tapes of the various speakers. One final note before I present you with the TD DMPS Protocol that I composed in the wee hours of the morning so that you can share it with other parents and your own DAN doctors, I would like to harp on Chemical detoxification one more time. I am working towards using non-toxic agents for cleaning the house and taking care of the garden by the end of this month. I am setting a target to test the carpets and the walls for toxic safety by the end of Nov. I will seal off the paints and carpets with products from www.nontoxic.com by the end of this year. I am going to clean up Marky's diet so that there will be no colors, nitrites, nitrates, aspartame, MSG, and definitely no gluten and casein as well. Marky is very picky eater so he will probably look like a shadow again! I am telling you this to help you face it because whenever I think about it, I just want to go back to sleep!!!! I will also get the Infrared Sauna for chem. Detoxification. Here is the TD DMPS protocol: TD DMPS ProtocolWe use only one pharmacy that Dr Buttar worked with for the formulation simply because this formulation has fewer side effects in the skin rash department. Please call 866-828-8203 to supply billing information and the patient's weight so that the pharmacist can calculate the dosage after I have faxed in the prescription. If you are out of the country, you must give them a fax number so that they can fax a shipping disclaimer to you. The shelf life of the product is 1 year. I advise you to buy 3 months at a time to save on expensive overnight shipping costs, especially for you overseas patients. The cost is $160 per bottle. A bottle will usually last for 2 months for kids and 1 month for adults. Application:1) Please apply to the inner arm in drops and get your child to rub it in with his or her other forearm so that none of the med is wasted. 2) Please do this at around 3:30 in the afternoon on day 1. You should give NO minerals to your child on this day. 3) For day 2, you give the first mineral dosage at 3:30 or 24 hours from the DMPS dosage. Then you give the second mineral dose at 6:30 so that you are giving a double dose of minerals in your day off from DMPS to make up for Day 1 when you get NO minerals. Side Effects:1) The most common side effect is skin rash. There are 3 kinds of rashes. They are: a) Oxidative Skin Rash: these are the worse and happen rarely. They look and behave like second degree burns b) Contact Dermatitis: These are transient and localized. These will disappear in 4-6 weeks. You prevent these by moving the application site around, maybe rotating from one arm to another, from one thigh to another, etc. c) Mercury Mobilization Rash: These rashes appear at different places in the body, separate from the actual application sites. 2) Yeast overgrowth and overgrowth of bad bugs in the gut: these will manifest in bad behaviours, either more "stimmy" or irritability or hyperactivity. Dr Buttar uses Diflucan. It may be necessary for us to do an Organic Test and a CSA or CDSA (Stool Test) to see what is happening and treat appropriately. Words of Advice:Try your best to work through the side effects because the rewards can be startling! There is improvement in: a) Speech b) Cognition c) Behaviours d) Socialization e) Eye Contact Dr Buttar's claim is that not only did 21 out of 36 kids lose their diagnosis but that they are not "different" at all from other kids in quirkiness of speech or mannerisms or anxiety or anything! He claims that the benefit in this treatment is that there is a continuous pull of heavy metals out of the system this way. He does not worry about the blood brain barrier because as you pull a layer of mercury out, the body re-distributes the mercury load around so that some will be pulled out of the brain that way. Again we think that even if the challenge test yields no mercury that the mercury will show up as we chelate and that ALL Autistic kids are mercury poisoned!!!! For more info, please go to: www.drbuttar.com Finally, Good Luck!!!! Miriam Jang MD |
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